More people are unfortunately turning to social media because neuropsychological tests are costly. But there is a silver lining
“MY ADHD (attention deficit hyperactivity disorder)? I figured it out on TikTok,” a new patient told me proudly.
She hadn’t turned to social media for answers because she wanted to; she just couldn’t afford the cost of a formal psychiatric evaluation. Appointments for neuropsychological assessments, the gold standard for diagnosing conditions such as ADHD, are increasingly hard to come by.
Many are also expensive and can run anywhere from US$800 to over US$10,000 (RM43,700), depending on the complexity of the tests. Even when the patient has insurance, it often doesn’t cover the costs or, worse, denies reimbursement after the fact, deeming the evaluation “not medically necessary”.
Is it harmful that social media platforms are filling an accessibility gap? The answer isn’t always “yes”, and the complexity of that deserves more discourse.
In my patient’s case, she’d only landed in my office because her new job came with decent coverage. But as I reviewed her story, something didn’t add up. The symptoms she described didn’t match the diagnostic criteria for ADHD as defined by the Diagnostic and Statistical Manual of Mental Disorders (DSM), which sits on every mental health professional’s shelf. In fact, they
weren’t even close. Yet, despite receiving a diagnosis of anxiety, not ADHD, from two separate professionals, she struggled to move away from what Dr TikTok told her.
She is hardly alone. More and more people are turning to social media for instant opinions on what ails them. The “put a finger down if…” mental health trend, in which a person holds up 10 fingers and puts one down each time they think a symptom applies to them, is increasingly popular.
Cost is one reason, but the anonymity of the Internet can be attractive, too. Even those not recording themselves are taking part in the trend behind closed doors. Another draw is that patients can retrofit their preferred answers to their symptoms. If they “want” to have ADHD or any other condition, they can find confirmation somewhere online. It’s no surprise, then, that social media platforms have increasingly supplanted actual doctors.
For clinicians like me, this shift is alarming. If WebMD ushered in the age of armchair diagnosis, TikTok has kicked the door wide open. By being fast-paced, algorithm-driven and emotionally compelling, the mental health content on these platforms often simplifies, distorts or completely redefines actual science-based research. The videos create a version of mental illness that feels relatable but often doesn’t line up with medical reality.
One 2023 study of 600 people showed a growing disconnect between how everyday people and professionals define what counts as a “disorder”. They found that many people thought that some sets of symptoms are mistakenly left out of the DSM while others are there but should not be. The researchers concluded: “The public’s concept of disorder is not in lockstep with organised psychiatry.” Similarly, a recent study published in Nature found that those who claimed high levels of autism traits in online questionnaires didn’t much resemble people formally on the spectrum in a clinical setting. In fact, there was so little overlap between these individuals’ self-assessments and professional assessments that they might have described different people.
In short, self-diagnosis is often way off the mark. And that matters because once someone goes from curiosity to self-diagnosis, the risks multiply. TikTok-style checklists and unverified quizzes don’t come with effective treatment plans, so checking boxes and answering questions in this format can lead people to self-medicate.
These actions can also prolong unnecessary suffering since algorithms can trap users in a loop of increasingly intense content that may worsen their mental health.
There are also privacy concerns for those who upload videos about their struggles — online spaces aren’t bound by Health Insurance Portability and Accountability Act (HIPAA).
Still, I don’t believe the solution is to reject social media altogether. Social media platforms have opened up conversations about mental health in ways that traditional medicine never could. They’ve given people — especially those who’ve been dismissed or ignored by professionals — a space to feel seen and supported. As a trauma therapist, I’ve worked with many women who were invalidated by the healthcare system, and I see how powerful it is when people find community and language for their experiences online.
I don’t believe that only mental health professionals should get to talk about mental health. But neither can we ignore the flood of misinformation online. Instead of being adversaries, perhaps clinicians and content creators need to work together. Right now, we’re not only in different lanes; we’re on completely different highways.
What if social media could be an on-ramp instead of a cul-de-sac? What if people started learning about mental health on TikTok but were then connected to actual treatment from trained experts? Yes, there’s always a risk of misinformation. But there’s also huge potential for spreading good, science-backed knowledge — if we find ways to collaborate instead of isolate.
The real issue is that mental health professionals aren’t trained to succeed in the world of social media. Doctors are not taught in graduate school how to make attention-grabbing videos or explain complex ideas with emojis, lip-syncs or colour-coded infographics. People such as Dr Becky Kennedy who translates mental health concepts grounded in science into bite-size morsels for the lay audience while cooking and folding laundry are the exception, not the rule.
But that needs to change, at least a little.
My peers need to venture forth from the safety of our clinical settings into the wild world of social media and plant our flag there. We have to put ourselves where we are most likely to be seen. Then, perhaps slowly, we can begin to meet misinformation with fact and wild speculation with sober advice.
Who knows? Maybe the next time one of my patients goes online to seek a diagnosis, she’ll find me there. — Bloomberg
- This column does not necessarily reflect the opinion of the editorial board or Bloomberg LP and its owners.
- This article first appeared in The Malaysian Reserve weekly print edition
The post TikTokers are self-diagnosing. That’s not all bad appeared first on The Malaysian Reserve.
